My Story: Terry Flood

What were the steps leading up to your diagnosis?

The steps leading to my diagnosis were pretty deliberate. It all began one day when I realized that my feet and legs we're losing sensation. I tried to remedy this by running more, thinking that it may be some kind of circulation issue.

Over the next few weeks the tingling and numbness begin to rise higher and higher. About the time that it reached my pelvic region is when I decided to go have it checked out at a local ER.

I had a battery of tests run on me, from CT scan, to MRI, to lumbar puncture, along with going over detailed information about my lifestyle and health history. After all the results are in and about two months of waiting, my doctor told me that it was most likely MS, but since it was the first instance he was calling it “clinically isolated.”

I was in denial. This was 2010 — I was a 27-year-old man, a combat veteran and leader, and I had the world to conquer.

My doctor prescribed me Avonex — I administered one dose to myself and threw it out. I was not going to be dependent on anything or anyone for my wellbeing and livelihood.

Fast forward six years — this month I told my nurse practitioner that I had been previously diagnosed and the tingling sensation in my hands and feet are still present. She quickly ordered me to undergo another MRI and requested my medical records from the previous stint in the hospital.

This was enough to confirm the diagnosis, with signs of slight progression. I have relapsing-remitting MS. I have accepted it and will begin medication in two weeks.

I am no longer in denial and I have to think about my quality of life 20, 30, 40 years from now. Therefore I'm going to do everything that I can to defy the odds while also following my doctor's advice.

What lifestyle changes have you needed to make?

As of right now I haven't had much help because I haven't told anyone. It isn't really a significant emotional event for me.

When I do tell people they don't believe me because I look healthy and fit and they don't understand the disease. I hope to begin integrating and socializing with others who have the same condition, but I do not want a pity party. To me this is just another obstacle to overcome.

Is there anything else we should know?