My Story: Kayla Black

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What were the steps leading up to your diagnosis?

When I was 22 year's old, I went blind in my left eye. As a gunsmith, I very much had to go to the doctor and have my eye checked out. I was diagnosed with optic neuritis and told to go to the hospital for further testing.

After two weeks and an MRI, I was diagnosed with multiple sclerosis because the MRI showed many lesions! During the first maybe five years I couldn't work a full-time job anywhere!

Without a full-time job I had no medical insurance, so I didn't treat my MS with any medicine except for steroid IV treatments when I relapsed.

The steroids caused avascular necrosis, so I now have two artificial hips due to avascular necrosis! I now collect social security which allows me to have Medicare! That has been, what I believe, my saving Grace because I can get the proper care that I need while fighting this disease.

What I mean by proper care, I have a port for Tysabri which I am doing well-being that I have over 130 lesions on my brain! Wow!

What lifestyle changes have you needed to make?

I get heated very quickly. I have trouble swallowing, finding the right words to complete a sentence, incontinence, falling, itching, and fatigue!

After two weeks and an MRI, I was diagnosed with multiple sclerosis because the MRI showed many lesions!

Who has been there for you? How?

My mother has been there for me, but she passed away last year on my birthday. I do not drive, but when she was around she would drive me to my doctor appointments and help me clean my house! She was my best friend, and I miss her all the time.

Who has been there for you? How?

My mother has been there for me, but she passed away last year on my birthday. I do not drive, but when she was around she would drive me to my doctor appointments and help me clean my house! She was my best friend, and I miss her all the time.

My mother has been there for me.

My mother has been there for me.

What accomplishments are you proud of?

I have an eleven-year-old son and he makes me proud.

What's your advice to someone else living with MS?

Get treatment and find a person you can count on always.

Get treatment and find a person you can count on.

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